The Cancer Support Community (CSC) has joined with almost 20 organizations in support of the Patient Experience in Research Act (PERA; H.R. 2244) which was introduced by Representatives Diana DeGette (D-CO) and Leonard Lance (R-NJ) in the U.S. House of Representatives. This legislation will create a pilot study in which three clinical trials will incorporate a distress screening measure to evaluate, document, and follow-up on the social and emotional factors experienced by cancer patients. The overall goal of PERA is to measure the impact of the full patient experience in clinical trials.
Please contact your Member of Congress TODAY and ask them to cosponsor PERA. It is important that we support the comprehensive range of needs facing cancer patients in all stages of treatment, including clinical trials.
Sincerely,
Kristen Cox Santiago
Senior Director, Policy & Advocacy
Cancer Support Community
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