Monday, July 31, 2017

American Cancer Society's Belles & Beaus Happy Hour 8.3.17

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Join us at the newest hot spot in New Orleans, Port Orleans Brewing Company, for Happy Hour on Thursday, August 3rd, as we count down the big Belles & Beaus Ball (Sept. 22nd) benefitting the American Cancer Society - New Orleans and the Patrick F Taylor Hope Lodge.

Sip suds and rub elbows with the 2017 Belles & Beaus of New Orleans and a host of other incredible people while enjoying the best this local brewery has to offer.

►$1 from every beer sold will be donated back the American Cancer Society.

ABOUT THE ACS:
For 100 years, The American Cancer Society has been leading the fight to end cancer. With your support, we have helped usher in an era where more people survive cancer than ever before. By translating our research findings into action, we've seen a 20% decline in US cancer death rates since the early 1990s. Join us to help finish the fight.

The American Cancer Society, American Cancer Society - New Orleans, and Belles and Beaus Ball New Orleans helped nearly 44,000 patients and caregivers save $36 Million in lodging costs last year including $12 Million through Mid-South Hope Lodges like the Patrick F. Taylor Lodge on River Road!

SAVE THE DATE: 

17th Annual Belles and Beaus Ball New Orleans

  • Friday, September 22nd
  • at Mardi Gras World
  • Dress is black-tie optional
  • Theme: Soaring Beyond
  • Live music, food, entertainment, and auction
To purchase tickets, visit nolabellesandbeausball.org

Understanding Post-Mastectomy Syndrome

Post-mastectomy syndrome is a condition affecting some women after surgery for breast cancer. This syndrome occurs as nerves begin to regenerate and heal.



PUBLISHED: MAY 19, 2017


Since having bilateral mastectomies and lymph node removal in both arms, I have experienced extreme breast area tightness and cording. This uncomfortable feeling is most noticeable when I try to extend my arms or reach to grasp something from a high or low position. There have been times, when I’ve reached to grasp an item, and I’ve had the muscle under my armpit seize up and cause severe pain. It’s been so bad I’ve had to freeze in position and try to get my breath until the muscle relaxes a bit and I can move again.
 
Remedies for this syndrome include acupuncture, physical therapy, medication for pain, and stretching. I’ve found the only thing that works for me is stretching for the muscle cramps and scratching for the itch. These symptoms will hopefully get better with time but they are frustrating.  
 



Learn More:



The Best Cancer Blogs of the Year - 2017
 


CURE wants to hear from you! We are inviting you to Share Your Story with the readers of CURE. Submit your personal experience with cancer by visiting Share Your Story
 
Not yet receiving CURE in your mailbox? Sign up to receive CURE Magazine by visiting GetCureNow.com

Cancer survivor? Duke’s new PTSD app helps patients and families overcome trauma of diagnosis and treatment

JULY 30, 2017 12:48 PM

Free Programs through the Broadmoor Improvement Association in August

Check for more events on the August 2017 calendar . All events will be held at the Art and Wellness Center



Money Management: Actions You Can Take Today
Tuesday, August 8th 6:30-8:00 p.m.

Join us for monthly financial literacy workshops presented by the Junior League of New Orleans.
Free workshop, dinner provided



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Make Music NOLA
Mondays, Wednesdays, and Saturdays

Make Music NOLA is a tuition-free music training afterschool program for students eligible for free or reduced lunch. Registration starts on August 1stat makemusicnola.org/.

37-year-old mom shares uncommon early-warning sign for breast cancer

While breast cancer is the second-leading cause of cancer-related deaths among women, it's most widely known to be detected by the discovery of a lump.
But that's not how 37-year-old Sherrie Rhodes, mother of three, discovered the first signs of her diagnosis, which she received after a biopsy earlier this week.
"Yesterday I was diagnosed with breast cancer," she wrote in a Facebook post on July 25. "It came as a total shock as this dimpling (in the pic) is the only symptom I had."




Tip of the Day:Save the Date

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Save the date!


National Farmers Market Week kicks off next Monday! Get out and celebrate by visiting one near you.
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    For Additional Information:

    Sunday, July 30, 2017

    IF JOAN OF ARC HAD CANCER

    Editors note:  In last month’s NFD, we heard from author Janet Lynn Roseman on WHY she chose Joan of Arc for her book as well as her inspiration for writing the book. Read below for Part II, a Q/A session with Ms. Roseman.
    Ms. Roseman.
    Q, It is interesting you chose Joan of Arc as the symbol for your book, can you share more about why you chose her?
    Certainly.  Actually Joan chose me.  After my mother passed away, I had a very difficult time adjusting to just how I would live in the world without her and to be honest, I still struggle with the answers to that question.  The truth is all I wanted and all that anyone who has suffered a tragic loss in their lives is to find the connection again.  I spent long, sleepless nights thinking about the amazing courage that she has during her ten year battle with cancer and I also thought about the many, many women I have worked with as an integrative medicine practitioner who also had extraordinary courage.  My mother’s journey was filled with unimaginable suffering and I thought about her amazing courage – it was humbling.  I didn’t like the mythology that people with cancer were somehow to be pitied and were weak, which is often the prevailing wisdom, which in my experience, was not true.  My mother possessed enviable courage and it took my breath away just how strong she was.  One day after she had passed, I tried to distract myself and visited a consignment store, something we had enjoyed doing together.  I asked my mom to show me a “sign” that she was with me.  Literally at my feet, there was a large painting face down on the floor and when I picked it up, there was a vintage painting depicting Joan on her horse with her head held high carrying a staff.  I knew in that moment it was my mother’s sign to me.  I read all things Joan, deeply knowing that she would be the symbol to honor my mom and all the other women I have loved and lost.

    Learn About the Tyler Robinson Foundation

    The mission of The Tyler Robinson Foundation is to strengthen families financially and emotionally as they cope with the tragedy of a pediatric cancer diagnosis by providing grants specifically to offset out-of-pocket life expenses.

    Saturday, July 29, 2017

    From Cancer to Career Changes, Kathy Bates Talks Life's Challenges


    Kathy Bates knows how to roll with the punches. In the last 14 years, she has beaten bohttps://parade.com/590180/nicolepajer/from-cancer-to-career-changes-kathy-bates-talks-lifes-challenges/th ovarian cancer and breast cancer. And, after a long and lauded career in film, the 69-year-old actress has shifted her focus to TV, starring in four seasons of FX’s American Horror Story and playing actress Joan Blondell in FX’s Feud. Next, she’ll star as Ruth, the owner of a California cannabis dispensary, in Netflix’s comedy Disjointed, out August 25.

    An ongoing challenge for Bates is lymphedema, a blockage in the lymphatic system often triggered by removing lymph nodes during breast cancer surgery. The chronic condition causes excessive swelling in the arms and legs and affects 10 million Americans, “yet nobody really knows what it is,” says Bates. She’s now a spokesperson for the Lymphatic Education & Research Network (LE&RN).
    We caught up with Bates to talk about lymphedema, her newfound niche in TV and ditching the prosthetics after a double mastectomy.





    Rethinking Body Image: Remember To Love Yourself

    This post is brought to us by Clarissa!
    It was recently Valentine’s Day and while the day is meant to share love with others, I also think it’s a great time to remember to love yourself.
    When I first started going on dates and had my first relationship (which wasn’t until sophomore year of college), I was incredibly nervous. Not only was I late in the game compared to many of my peers, but I was also incredibly self-conscious. Sure, I had the same questions running through my head that most girls consider – does he really like me, does he think I’m pretty, will he ask me out again? But, the nerves really came from the fact that I simultaneously contended with some more serious questions, ones that most girls don’t have to worry about – is he going to be grossed out if he sees my scars, does seeing my scars mean I should tell him I had cancer twice, and what should I do about the stretch marks (caused by all the steroids I took during treatment) that cover my lower abdomen and lower back?
    Before I knew it, the normal questions had spiraled into this realization that I found fault with my body for things that could not be changed. I had not accepted those parts of me, so how could I expect someone else to?

    Story of one co-survivor – and financial planner. Why finances matter.

    New post on NOU

    Story of one co-survivor – and financial planner. Why finances matter.

    by Wendy Payne
    wendy-2
    Wendy Ann Payne CSA, CEP® Wealth Management Advisor and Founding Partner of Centurion Wealth Management, LLC
    Editors note:   This article was one of a select few chosen for the inaugural print edition of New Focus Daily which debuted at SURVIVORville 2017.     We would like to thank Wendy for sharing such a personal story with our SURVIVORville attendees and New Focus Daily readers.   A co-survivor's journey is important and needs to be heard.   Finances are unfortunately one of the many areas of concern for those dealing with cancer and we appreciate Wendy's willingness to share that aspect of her co-survivor journey.
    Near and Dear to My Heart - Financial Planning for Women. Really?
    We strive for and embrace the “happily ever after” dream.  We go to school, grow up in loving families, have rewarding careers, eventually meet our soul mates, build a home of our own, create cherished memories, and build meaningful and fulfilling relationships along the way.  However, reality throws us a curve ball every now and then, putting everything we worked so hard for in jeopardy.  It can lead us down a path completely different than we anticipated.
    When one’s “happily ever after” is interrupted, as a financial planner and advisor, I have an opportunity to positively impact the lives of others.  Making a difference is what I live for—it is the “why” behind what I do.  Why is financial planning for women such an important topic to me?  It’s personal.
    This issue hit home for me in when my uncle passed away suddenly.  He was 42 years old, leaving my 40-year old aunt devastated.  She never dreamed she would become a widow at such a young age.  Uncle Kurt handled the family budget and finances.  He owned and operated his own construction business while Aunt Alice was at home raising their two sons.
    When I initially asked my aunt about their financial situation, she informed me that my uncle had a will, life insurance policies, investments, retirement accounts, and that they had a good bit of money in the bank.  I initially took some comfort in this.  However, I later learned that my uncle had personally guaranteed business debt.  Also, there was no business succession plan in place, which meant business operations could not continue without Uncle Kurt.  When the business came to a halt, so did the income that provided for my aunt and their children.
    “How will I replace lost income? Will I be able to keep our home?  I have been out of the workforce for over eight years - do I have the skills needed to obtain a meaningful job that will produce enough income to support my family going forward?  How will this change my retirement plan?  How will I handle and settle Kurt’s estate?  What is probate?  I don’t have the faintest idea where to begin.  Who can I trust to help me through all this?”  All these questions more than overwhelmed my aunt.
    At the time, Aunt Alice and Uncle Kurt were sure their planning efforts were thorough—that they had covered all their bases, did all they were supposed to, and that everything was done properly to avoid such a catastrophic loss.  As it turned out, that wasn’t the case.
    Here we are over 11 years later and my aunt is still working two full-time jobs just to make ends meet.  Her quality of life is nowhere near what Uncle Kurt would have wanted.  This is exactly what they both thought they had planned to avoid.
    Then in 2007, a different kind of devastation hit my family.  My mother had just finished the 16-month process of building her dream home.  She left northern Virginia and moved to Homosassa, Florida looking forward to adapting to her new warm weather community.  Just six months later, my mother was diagnosed with stage 4 lung cancer.  The cancer had already spread to her liver and other areas.  After many trips to Florida to care for Mom after chemotherapy treatments and such, my sister and I convinced Mom to move back to Virginia where she had a support system of family and friends nearby.  Soon thereafter, Mom moved back to Virginia and came to live with me.
    The basic broad questions began to flood my mind.  “How will I take care of my mother at home, while balancing my children, marriage, and my career?”  These were followed by more specific questions, “How can I help her find the right doctors and medical professionals here in Virginia?  How do we know they are the right medical professionals to treat Mom?  Are her options for treatment here in Virginia different than in Florida?  How am I going to get someone to cover my job responsibilities when I take Mom for treatments and tend to her during her ‘bad days’ at home?  How will that impact my income and how will my family handle the shortfall?”
    Being a financial planner, all the questions relating to Mom’s finances and her estate planning inundated my mind as well.  “I have to find out everything there is to know about Mom’s income, expenses, debt, taxes, insurance and everything else.  How can I manage all of mom’s affairs without infringing upon her independence?   What are the most important things on Mom’s bucket list?  What’s most important to her?  What can I do to help her make the most of the ‘good days’ she has?  When the time comes, what are Mom’s final wishes?  Where does she want to be laid to rest?  Who will inherit Mom’s belongings and assets?  She needs to put all that in writing.  What is the best way I can facilitate all this for Mom?”
    I struggled with feelings of panic, worry and fear.  As a mother, how do we distract or redirect our kids?  Give them something to do.  That’s exactly what my mother did.  She came to me and said, “Alright Wendy, I’m going to be your client and I need your planning expertise and guidance.  I am dying.  While each of us will die at some point, it just so happens that I have to prepare much earlier than I ever imagined that I’d have to.  I want to do everything I possibly can to make sure that I don’t become a burden to you, or to April (my sister).  As my health gets worse and worse, I don’t want difficult decisions to fall on you girls.  And when I pass away, I don’t want the act of wrapping up my personal and financial affairs to be a complete mess and/or major inconvenience.  I want you to treat me like a client and walk me through the various stages of planning for my death.”
    So that’s what I did.  I knew the clock was ticking—and didn’t know how much time was left on the clock itself.  So together, Mom and I planned.  We made a list of the items and issues we needed to discuss sooner or later.  We then rearranged the list based upon Mom’s priorities.  As time went on, our initial list evolved into many other lists, sub-lists if you will.  Mom and I talked about all the finance-related issues, medical topics and end of life planning.  Together we learned a lot about a wide array of topics as well as about the process of end of life planning itself.  And I took notes, lots and lots of detailed notes—I didn’t want to forget anything.   Our talks led to other discussions about Mom’s life, parenting, love, religion, personal beliefs, childhood stories, Mom’s experiences, her desires and future wishes for me and my sister, as well as the grandchildren.
    Our discussions were not always dark and heavy with sadness.  We allowed ourselves to be silly and laughed a good bit too.  When talking about cremation, we learned about urns and how the costs vary based upon size, type, style and such.  Who knew urns could be so expensive!  WOW!  What type of urn does Mom want?  She hadn’t considered that.  Since Mom knew she wanted her remains to be scattered, she saw no value in buying an expensive urn because it “looked pretty,” especially since it would be for temporary use.  Mom joked about buying an urn on Amazon. “Better yet, if we purchase a used urn on eBay, you could then re-sell it on eBay after I ‘move out’ to get some money back.”  We even kidded around about how that advertisement/description might read.  It would be “hilariously ridiculous” for sure.  That’s what mom said.
    Later on, Mom told me it was time to put the shoe on the other foot and began to talk about herself in third person context.  In retrospect, perhaps it was easier for Mom to refer to herself in third person for certain discussions.  She said, “Wendy, because your mother has been diagnosed with incurable cancer, you will be the one to coordinate her medical needs and her financial affairs when she becomes unable to do so for herself.  You are also the one who will be responsible for settling your mother’s estate when she dies.  You need to do all you can right now to ensure you are absolutely prepared and ready to act in that capacity.”
    Whoa!  As if that wasn’t enough to digest, she went on to say, “Wendy, your unique internal compass leads you to teach, to serve, and to guide others in such a caring way.  Because of your genuine concern for the financial well-being of others, you have educated and helped so many of your clients through their own life calamities.  You meticulously plan through the many possible scenarios logistically, educate and prepare your clients for the various outcomes.  As a result, these families are able to make well-informed decisions, prepare for the loss and navigate through their life stage transition knowing with certainty that everything was addressed and handled in a thoughtful manner.  You provide these families with peace of mind knowing no stone was left unturned.  What a difference this makes in the lives of those families!”
    She continued, “Wendy, now I want you to become your own client.  I want you to logistically think about your role and responsibility as Power of Attorney and eventually as Executor of your mother’s will and estate settlement tasks.  I don’t want you to look back one day and wonder what else you could have or should have done.  From that perspective, do what you need to do now.  Please do this because I need to know that you will have the same peace of mind your clients have when your mother dies.”
    So I became my own client.  I went through the exact planning process that I had previously designed for my clients who were caring for an aging parent and were in the throes of estate planning.  And I’m so glad I did as it was immensely helpful.  Navigating through my own planning process, from the client’s perspective, was certainly a learning experience on many levels.
    What grew from all this was the desire and passion to help others going through this life calamity as well as other stages of life transition.  Thus began my quest to provide educational and consultative programs focused on helping others plan for and work through their own life stage transitions. Clients I work with emerge from their situations with the ability to make more knowledgeable decisions and have a better understanding of how they can move forward in a more confident manner than before.
    When one’s “happily ever after” is interrupted by a diagnosis, death, or divorce, I have an opportunity to positively impact the lives of those affected.  I’m not saving lives like doctors, police officers or fire fighters do.  However, I focus on quality of life.  By educating and consulting women about the financial planning issues that affect their lives, I empower and encourage and motivate them in the right direction toward financial security.  As a Financial Planner, this is what motivates me every single day.
    It was June 6, 2008 that I lost my mother—just five days before her 52nd birthday.  We had just enough time to plan everything before she discontinued her chemo treatments.  Because of all the planning we did together, everything went as smoothly as it possibly could have.  I often reflect on life lessons from Mom.  Empathy for others—Mom’s last life lesson for me was painfully beautiful and everlasting.
    Disclosures:
    This content is for educational purposes only.
     Investment Advisor Representative of Spire Wealth Management, LLC. Advisory Services offered through Spire Wealth Management, LLC, a Federally Registered Investment Advisor. Securities offered through an affiliate, Spire Securities, LLC, Member FINRA/SIPC.
     The views and opinions expressed in this article/presentation are those of the authors and do not necessarily reflect the opinions of Spire Wealth Management LLC, Spire Securities LLC or its affiliates. Past performance may not be indicative of future results.
    These materials are provided for general information and educational purposes based upon publicly available information from sources believed to be reliable—we cannot assure the accuracy or completeness of these materials. The information in these materials may change at any time and without notice.
    Wendy Payne | July 29, 2017 at 8:50 am | URL: http://wp.me/p7szYo-Y2
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    Friday, July 28, 2017

    My Late Husband Had the Same Cancer as John McCain, and Health Insurance Was a Godsend

    Aaron was 32 when they found it. Or, as the doctors said, when the tumor “presented itself,” pushing into his brain until it triggered a seizure at work, his body crumpling to the floor of his cubicle, his coworkers watching in horror. They didn't know that their carefree jokester of a colleague was being temporarily hijacked by a stage IV glioblastoma brain tumor.
    Google glioblastoma at your own risk—it’ll just make you sad. But if it sounds familiar, that may be because on July 19, Senator John McCain's office announced that he, too, has a glioblastoma. It was discovered when he was in surgery to remove a blood clot, and he and his family are now "reviewing further treatment options," the statement says.

    Glioblastoma is a particularly insidious cancer, and I wouldn't wish it on anyone.




    Thank You From the Cancer Policy Institute


    Late last night the Senate voted to reject the so-called "Skinny Repeal" of the Affordable Care Act by a vote of 51 to 49. The bill would have repealed the insurance mandate for individuals, partially repealed the mandate for employers, and allowed states to use 1332 waivers to opt out of essential requirements like coverage of pre-existing conditions and the 10 Essential Health Benefits. The Congressional Budget Office (CBO) had estimated that this bill would leave 16 million Americans without health care. 

    Thanks to your advocacy and the advocacy of millions of Americans who all refused to allow the Senate to strip them of their coverage, the bill is now dead. Three Republicans-Senators Susan Collins (ME), Lisa Murkowski (AK) and John McCain (AZ)-joined all 48 Democrats in opposing the bill. Thanks to their courage and confidence in the support of their constituents, they defied their parties to do the right thing on behalf of all Americans. 

    Thank you for all of your calls, letters, Tweets, and Facebook posts over the past several months. Your advocacy and your stories are what made a difference in this debate. The Senate will now return to regular order to consider a health care bill, and we will make sure to keep you updated and engaged in the debate on behalf of cancer survivors across the country.
    Sincerely,
    Elizabeth Franklin
    ​Senior Director, Policy and Advocacy
    ​Cancer Support Community
    A consummate wife, mother and urban planning consultant, Corinne DuCre-Villavasso, was living the life she always dreamed of when in 2014 she tested positive for the Braca 1 gene mutation commonly associated with breast cancer. DuCre-Villavasso had just given birth to her third child and was visiting her physician for a post-partum check-up when told of her diagnosis.
    DuCre-Villavasso always knew she was at a very high risk of developing the dreaded disease. When DuCre-Villavasso was only nine years old, her mother was diagnosed with cancer and died just three years later. DuCre-Villavasso’s father, Merlin DuCre, has survived two bouts with cancer. Sister Rhoda also succumbed to the disease on her mother’s birthday.
    After the mammogram, blood work, and MRI confirmed calcification in her left breast, DeCre-Villavasso elected to have a bi-lateral prophylactic mastectomy, a preventive measure in which both breasts and all the surrounding lymph nodes are surgically removed. She later had breast reconstruction surgery. The double mastectomy was DuCre-Villavasso’s best chance to see her children – now ages 20, 12 and 2 – grow to maturity. “I wanted to prolong my life and didn’t want my children to experience what I went through as a child,” she said.
    Recovery brought many challenges including depression, a lack of confidence and the realization that her body would never be the same. At that same time, DuCre-Villavasso’s cousin, Hannah, was in remission. Together, they envisioned a foundation that would purchase supplies to help cancer patients rebuild their lives. After her cousin’s subsequent death, DuCre-Villavasso created Hannah’s Klozet, a 501C-3 non- profit organization, in her cousin’s memory.
    Hannah’s Klozet will hold its inaugural fundraiser, The Resiliency Gala, Saturday, July 29, at the University of New Orleans’ University Center Ballroom. The event begins at 7 p.m. and features entertainment by Kermit Ruffins.
    While the hospital will provide several compression bras to each patient before discharge, other compression garments including sleeves and socks – used especially by men to reduce swelling – must be purchased. “For women who choose not to have reconstruction, prosthetics – which cost from $250 to $500 – are very important,” she said. Sometimes women in rural or underserved communities might insert men’s socks into their old bras instead of purchasing the proper prosthetic. “Often these items are not fully covered by insurance. We defray the out-of-pocket expenses,” DuCre-Villavasso explained.
    Hannah’s Klozet will also pay for new bras after breast reconstruction surgery.
    During the course of her surgery, recovery and reconstruction surgery, DuCre-Villavasso talked with many other breast cancer patients about the adjustments they faced. Almost all of them spoke about the embarrassment and difficulty they felt when shopping for a new bra after reconstruction surgery that fits properly. “Let’s face it, that dresser drawer of bras you wore before are of no use,” said DuCre-Villavasso.
    Because few women know their new bra size, they must take off their tops to be measured. “I went to Victoria Secret and walked out uncomfortable and discouraged. It was frustrating not to get the attention I needed,” said DuCre-Villavasso.
    DuCre-Villavasso is currently partnering with Ocshner Hospital and St. Charles Surgical Center to identify prospective clients. “Because of medical records privacy laws, I might never meet a client we are helping,” she explained. “But I know our services are greatly appreciated.”
    She is also partnering with three intimate apparel stores including Basis Underneath in Uptown New Orleans whose staff is specially trained. Other participating shops include Ooh La La Bras and Bra Genie. Ochsner offers prosthetics via Ochsner Total Solutions.
    DuCre-Villavasso plans to hold a three day training session for hair stylists and barbers to teach proper grooming for cancer patients.
    “Cancer touches almost every family. We’d like to urge people to support Hannah’s Klozet so that we can help others in need,” she concluded. Tickets, $75, are available at www.hannahsklozet.com.
    Danae Columbus, who has had a 30-year career in politics and public relations, offers her opinions on Thursdays. Her career includes stints at City Hall, the Dock Board and the Orleans Parish School Board and former clients such as District Attorney Leon Cannizzaro, City Council members Stacy Head and Jared Brossett, Foster Campbell, Lt. Gov. Jay Dardenne, former Sheriff Charles Foti and former Councilwoman Cynthia Hedge-Morrell. Her current clients include District B City Council candidate Seth Bloom.

    Tip of the Day: Move to Healthier Choices

    tipoftheday

    Move to healthier choices.


    Move to low-fat or fat-free milk or yogurt by choosing 1% or skim in place of 2% and whole varieties.
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