Cherie RinekerAuthor ~ A Pilgrimage Without End, How Cancer Healed My Broken Heart ~979-248-7306
Did you know that AIDS research still gets $270 million of funding every year, even though it no longer is a deadly disease? Multiple myeloma only gets $57 million. Makes you wonder if this cancer that still takes so many lives and grows every year with younger people being diagnosed would have a CURE if we too, could get $270 million. People finally started caring about AIDS when they realized it could affect them also. Well, myeloma is becoming a much more common cancer, and if we would have a more powerful voice, people like me and many other myeloma friends, would not have to die anymore!
My daughter does not want to lose me, and I don't want to be lost. Following is the letter I posted on Facebook for my friends and fans. I am desperate to spread awareness regarding the reality of this horrible cancer.
Yesterday, I saw my oncologist. As many of you know, I have been dealing with a lot of new bone issues that result in a lot of pain. It seems that I crack ribs just by bending slightly, turning wrong, or stepping off the sidewalk (all three happened in the past two months). Obviously, that has made me more on edge and feeling a bit discouraged as my medical team’s bag of tricks is all but empty. It seems my only hope is a trial that is not taking place at MD Anderson, thus requiring me to travel out of state. This is a very hopeful trial with a long waiting list, and I have no guarantee of being accepted, since it depends on my health status and immune numbers which have been very low for a long time.
Needless to say, there were some tears. I have fought the good fight for nearly five years now. I have so much to fight for. But after seeing many of my fellow myeloma warriors succumb to this fight, I also know I do not want to fight needlessly. All that can be done is throw more and more chemo at me, which will ultimately kill me just as the cancer would. Chemo sucks! Cancer sucks!
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