Moving Beyond Cancer in NOLA: Cancer Policy Institute April Newletter

April 2019

Dear Catherine,

“All great literature is one of two stories; a man goes on a journey or a stranger comes to town.”

-Leo Tolstoy

Stories are universal tools to persuade and because of this, stories are excellent tools in an advocate’s toolbox. The quote by Leo Tolstoy above also illustrates why storytelling is one way in which anyone impacted by cancer can utilize the craft to impact health care policy. A diagnosis of cancer is most often a strange occurrence that takes the patient and their loved ones on a journey they were unprepared to travel.

Take a look at this month's blog and read Kelly's story for inspiration to develop and tell your own story and help others find their own way on their unexpected journey.

Elizabeth F. Franklin, LGSW, ACSW
Executive Director
Cancer Policy Institute
action@cancersupportcommunity.org

Storytelling: A Powerful Tool for Advocates

Stories have existed long before recorded history. Humans have been telling stories as a way to connect, a way to inspire, and a way to leave a legacy. Stories are universal tools to persuade and because of this, stories are excellent tools in an advocate’s toolbox. So, how can advocates prepare to tell their story?

Advocate Spotlight: Kelly Hendershot, Quad Cities, IA

"Don’t let the thought that “someone else can do it better” stand in the way of becoming an advocate like I almost did. Advocacy is a wonderful way to grow and challenge yourself, while advancing the needs of others by giving those needs a voice."

Read more about Kelly's advice for overcoming your fear and diving into advocacy.

Get Involved!

Our Cancer Support Community and Gilda's Club affiliates provide plenty of opportunities for you to learn more about advocacy and get involved. Find the affiliate location near you and check out their calendar of events for opportunities to get engaged.

Comments on Rebates, Patient Experience Data, and more

The Cancer Policy Institute stays busy providing comments and insights from the patient's perspective on a variety of legislative and regulatory issues. Explore our Policy Comments to learn more about our position on a recent proposed change to rebates, pain management practices, patient experience data, and more.