Friday, July 19, 2019

Cancer Survivors and Partial Remission: If Only We Could Freeze Time

There are times in our cancer journey – and in life – when we want to “freeze time.” I am only in temporary remission, and eventually will have to go back on chemo again. This time it will likely be a new one with unknown consequences.
 


PUBLISHED July 18, 2019

Jane has earned three advanced degrees and had several fulfilling careers as a librarian, rehabilitation counselor and college teacher. Presently she does freelance writing. Her articles include the subjects of hearing loss and deafness, service dogs and struggling with cancer. She has been a cancer survivor since 2010.

She has myelodysplastic syndrome, which is rare, and would love to communicate with others who have MDS.
I think every one of us has wonderful periods of our life where we want to have nothing change. Then there are the other times when things are horrible and we can’t wait for everything to get better.
   
It was my wonderful oncologist, Dr. Shruti Trehan, who gave me the phrase and idea for this article. I had been through eight years of chemo to stay alive, accompanied with all the fatigue and discouraging side effects we all know. I was no longer able to tolerate the chemo. Meanwhile by the grace of God, my blood levels stabilized except for my red blood count. Presently, I am able to take Procrit shots. Without the chemo, my white blood count has doubled, and I feel great. I have energy I haven’t experienced for, well…eight years.
   
Now the caveat. My doctors have been very honest and told me the shots may last up to a year. I am only in partial remission, and eventually will have to go back on chemo again. This time it will likely be a new one with unknown consequences.




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