March 2020
Dear Advocates and Friends,
Last month I noted that 2020 was already off to a hectic start and it has only become more eventful since then. We know that the top concern on many people’s minds is the impact of the novel coronavirus (or COVID-19), especially for people living with compromised immune systems. We hope you will take a moment to visit our website to learn what cancer patients, survivors, and caregivers need to know about COVID-19, and the actions CSC is taking to provide support to individuals impacted by cancer.
On a positive note, we are thrilled to introduce you to this month’s featured advocate, Lauren Barnes, who chairs the CSC Board of Directors. Lauren is a fierce and longtime advocate for people living with cancer and we know you will be inspired learning more about her. We also want to thank those of you who participated in our virtual advocacy day on March 4. We were excited with the outstanding response and look forward to updating you on this important work to ensure that the full patient experience is incorporated in all levels of policy making.
As always, thank you for your partnership!
Elizabeth F. Franklin, MSW
Executive Director, Cancer Policy Institute
action@cancersupportcommunity.
Executive Director, Cancer Policy Institute
action@cancersupportcommunity.
What is the Federal Government Doing to Help People Impacted by Coronavirus?
If you are a person impacted by the novel coronavirus (COVID-19), are living with cancer, or are immunocompromised, one important way to maintain some sense of control in what might be an anxiety-provoking time is to understand what is being done from a policy perspective to help respond to the pandemic.
Advocate Spotlight: Lauren Barnes
Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Lauren and her passion for ensuring that patients are able to afford and easily get the best treatment for their disease.
What Cancer Patients, Survivors, and Caregivers Need to Know About the Coronavirus
For many cancer patients and survivors with compromised immune systems, the reporting on this public health emergency may be source of anxiety. At a time when information is coming at us at a rapid pace, the Cancer Support Community (CSC) is putting resources for you in one place at cancersupportcommunity.org/
Click on the READ MORE button to learn what cancer patients, survivors, and caregivers need to know about COVID-19, and the actions CSC is taking to provide support to individuals affected by cancer.
Connect to Support Services
MyLifeLine allows you to connect with more than 2,000 online discussion board members supporting each other with information, opinions, stories, and inspiration.
The Cancer Support Helpline is staffed by counselors and resource specialists who provide services in English and Spanish. Connect by phone at 1-888-793-9355, or by live chat, Monday-Friday 9 am- 9 pm EST. As part of the added support people might need due to concerns over COVID-19, the Helpline will remain open Saturdays and Sundays from 9 am- 5 pm EST.
Recent Cancer Support Community Policy Comments
The Cancer Support Community has recently released a policy position statement on the recent Centers for Medicare & Medicaid Services (CMS) Medicaid guidance on block grants. The Cancer Support Community opposes the Medicaid guidance that allows states to convert a portion of their Medicaid program funding into a block grant program.
Click on the LEARN MORE button to read the full position statement on the Medicaid guidance.
Cancer Support Community
“So that No One Faces Cancer Alone”
734 15th Street NW | Suite 300
Washington, DC 20005
Washington, DC 20005
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