July 2020
Dear Advocates and Friends,
We are more than halfway through 2020 and the coming months show no sign of slowing down—whether it’s strengthening the Affordable Care Act or looking towards the election in November, a lot is at stake for people impacted by cancer. It can be tough to stay focused right now—we are all doing our best to stay healthy and invest in our emotional health—but this moment calls for renewed attention to policy issues and grassroots advocacy. We are here to keep you up-to-date on these issues and continue our partnership. Together, we know that community is stronger than cancer, and we are so proud to work alongside you in this moment and into the future.
Elizabeth F. Franklin, PhD, MSW
Executive Director, Cancer Policy Institute
The Affordable Care Act (ACA) has provided health insurance coverage to millions of Americans through the establishment of individual marketplaces and the expansion of Medicaid. It also has protected Americans with pre-existing conditions and allowed young adults to stay on their parent's insurance until the age of 26.
Click on the button below to learn about the impact the law has had on the cancer community as well as the current threat to the ACA.
Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. This month we feature Kim Praitano, President & CEO of Gilda’s Club South Florida.
CLICK HERE to learn more about Kim and her passion for psychosocial support in cancer care.
CSC welcomes the FDA’s new pilot program, Patient Project Voice, as a thoughtful step towards the sharing of patient experience data (PED) collected in clinical trials.
For years, the CSC has been in conversations with the FDA on the importance of collecting PED. We are very encouraged to see the agency pursue this opportunity and are eager to work with stakeholders to make the project a success.
Every ten years, the U.S. Census Bureau conducts a census to count every person in the U.S. and U.S. territories. The results of the census inform decision making and affect the support and amount of money your community will receive in federal funding.
For people living with cancer, survivors, and caregivers, data from the census has a trickle-down effect on policies that may impact the accessibility and availability of quality health care services in your community.
Are you a Black or African American person who has been diagnosed with multiple myeloma OR have you helped care for a loved one who is a Black or African American person with multiple myeloma? If you answered yes to either question, CSC invites you to participate in our Multiple Myeloma Virtual Workshop on August 14-16 to help us understand barriers to clinical trial participation and improve educational and decision-making tools for people living with multiple myeloma. Participants will be thanked for their time with a gift card.
Cancer Support Community
“So that No One Faces Cancer Alone”
734 15th Street NW | Suite 300
Washington, DC 20005
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