Monday, December 17, 2018

Giving Your Provider the Pink Slip

As patients, we need to remember that we may not wear the white coat, but we definitely wear the pants in the doctor-patient relationship


PUBLISHED December 17, 2018

Sarah DeBord was diagnosed with metastatic colon cancer at age 34. In the years since, she has turned her diagnosis into a calling, and become an advocate for other young adults diagnosed with colorectal cancer and parents with young families facing cancer. She works as a communications and program manager for the Minneapolis-based Colon Cancer Coalition , volunteers her time with the online patient-led support community COLONTOWN , and blogs about her often adventurous experiences of living with chronic cancer at ColonCancerChick.com.
A Facebook memory popped up on my feed from fpir years ago, and it was one that reminded me of the time I put my big girl pants on for the first time as a patient and fired my oncologist.

Two years into treatment, I moved to a new state and expected a smooth transition to a new clinic where my new doctor would pick up where I had left off. I knew I would be continuing on with the same chemotherapy plan, and knew what to expect as I got hooked back up to the bag under his care. Only things didn't continue on as expected, and I didn't tolerate these continuing rounds of chemo as well as I had before.

Unlike my first 12 rounds on this chemo cocktail, my nausea wasn't controlled with an assortment of antiemetic IV meds given to me in advance. My beloved anti-nausea pills weren't even making a dent in my ability to take the edge off the paralyzing sickness. All I could do was stay motionless in bed for days, eventually throwing up with no regard for any of the long-lasting antiemetic drugs that were pumped into me before my infusion.

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