Saturday, May 4, 2019

Finding My Tribe

I didn't see how alone I was with cancer until I found purpose and friendships with advocacy.


PUBLISHED April 29, 2019

Martha lives in Illinois and was diagnosed with metastatic breast cancer in January 2015. She has a husband and three children, ranging in age from 12 to 18, a dog and a lizard.
Although I started writing about my experience of living with cancer soon after I was diagnosed, I didn't put "my story" together with cancer advocacy until about a year and half later. That was when I met a tremendous advocate, Katherine O'Brien from the Metastatic Breast Cancer Network. Before then, I didn't really think about advocacy as something I was doing. I wrote to share how I live with cancer and how I find hope and resilience despite loss. I thought a lot about the people who might read my words, what they might be experiencing and how others had been there too.

Katherine and I are now friends, but I've never asked her what prompted that first contact. I suppose I'd been an advocate before then, but Katherine was my first introduction to how organized advocacy can do so much to change the trajectory of metastatic cancer. I was lucky to meet Katherine when I did, in part because she supports and teaches others. That selflessness was the ideal introduction to advocacy for me and has shaped how I think about my own advocacy as furthering and amplifying everyone's hard work.



Friday, May 3, 2019

Script Your Family's Future: Why You Need an Estate Plan


'Jeopardy!' host Alex Trebek opens up about cancer battle l GMA

Food Anxiety: How Cancer Changed the Way I Eat

Since being diagnosed with cancer, I can't walk into a grocery story without hearing B.B. King sing "The Thrill is Gone." My relationship with food changed, and I often wonder if we'll ever be able to fall in love again.


PUBLISHED April 30, 2019

Sarah DeBord was diagnosed with metastatic colon cancer at age 34. In the years since, she has turned her diagnosis into a calling, and become an advocate for other young adults diagnosed with colorectal cancer and parents with young families facing cancer. She works as a communications and program manager for the Minneapolis-based Colon Cancer Coalition , volunteers her time with the online patient-led support community COLONTOWN , and blogs about her often adventurous experiences of living with chronic cancer at ColonCancerChick.com.
An article in CURE came up in my Twitter feed before Christmas and I clicked on it immediately. The timing couldn't have been more perfect as I was sandwiched between two food-centric holidays where someone would always comment on my plate that wasn't piled high with traditional food, or notice that I turned down any offer for seconds. In this article I saw words like "food anxiety," and read other patients describe food as a "chore" and their lack of desire to eat. Every word resonated with me and I kept ending each paragraph with, "That's me!" Through this article, I found this little corner of cancer that I had never heard talked about, and every word validated this weird post-diagnosis perception I'd developed toward food that I believed was singular to just me.

Not a day has gone by since I was diagnosed that I haven't climbed on the scale for the opposite reason I climbed on it before cancer. Eight years prior, I watched as it ticked down to numbers I hadn't seen since middle school despite a steady diet of French fries and milkshakes. My cancer diagnosis finally explained that unexplained weight loss, and my relationship with that number on the scale was forever changed when I discovered it was a tumor sucking the calories out of everything I consumed. For me, the number on the scale became a measure for my level of sickness, and a subsequent meter for my level of cancer-related anxiety.


Tip of the Day: Inspire a future chef


Tip of the Day: May 3, 2019

Wednesday, May 1, 2019

Seeking Beauty in the Busy

Many days we allow our productivity to take over and devour the beautiful moments in our day. What happens when we take pause at the end of the day to reflect on the beauty we may have missed?







Tip of the Day: Try a new whole grain!